Jake has had a rough couple of days. Things seemed to be going so well, he even slept through his first feeds five nights in a row. On Friday/Saturday Kev and I started to notice he wasn't himself. Very fussy at night, throwing up and a few other things. Finally after a very long night on Saturday we decided to call our neurologist. After a short discussion he asked that we make the trip to Edmonton for a check up first thing Monday morning. So we packed up after church and again came to Edmonton.
We had a MRI first thing Monday and then met with the neuro team. Although there is mild change since our appointment on Sept 7th the "clinical picture" (which is what the behaviour of the patient is) finally matches enlarged ventricles (fluid on the brain). Jake is scheduled for a shunt insertion tomorrow (Tues Sept 18th) at 9am.
The amazing thing is we feel totally happy and at peace with this decision. I keep waiting to feel out of control, more hospitalization, more medical gargen to learn. Yet as we sat in the pre-op clinic waiting to meet the anesthetist I turned to Kev and shared how totally blessed I feel we are with Jake. There we were watching parents with children with hundreds of medical complications and conditions, and all were facing is spina bifida. Only a shunt. I know this might not make sense to everyone, after all we have to face things most families only dread the thought of. Yet in Gods amazing grace we're not facing half of what others in this hospital are. And we have the protection of heaven and God's personal angles to carry us through.
How totally blessed we are.
My parents are in Europe so my sister is coming to be our "third wheel" and constant helper. Another amazing thing how illness brings out the best in those around you. We appreciate her and everyone that has played a special part in our child's life. Also the prayer warriors that have kept us in their thoughts. God has been so faithful to your prayers we hope you all see that.
Keep praying. I'll do my best to update our blog tomorrow night, or sometime during the day.
We love you all!!!
Mel
We had a MRI first thing Monday and then met with the neuro team. Although there is mild change since our appointment on Sept 7th the "clinical picture" (which is what the behaviour of the patient is) finally matches enlarged ventricles (fluid on the brain). Jake is scheduled for a shunt insertion tomorrow (Tues Sept 18th) at 9am.
The amazing thing is we feel totally happy and at peace with this decision. I keep waiting to feel out of control, more hospitalization, more medical gargen to learn. Yet as we sat in the pre-op clinic waiting to meet the anesthetist I turned to Kev and shared how totally blessed I feel we are with Jake. There we were watching parents with children with hundreds of medical complications and conditions, and all were facing is spina bifida. Only a shunt. I know this might not make sense to everyone, after all we have to face things most families only dread the thought of. Yet in Gods amazing grace we're not facing half of what others in this hospital are. And we have the protection of heaven and God's personal angles to carry us through.
How totally blessed we are.
My parents are in Europe so my sister is coming to be our "third wheel" and constant helper. Another amazing thing how illness brings out the best in those around you. We appreciate her and everyone that has played a special part in our child's life. Also the prayer warriors that have kept us in their thoughts. God has been so faithful to your prayers we hope you all see that.
Keep praying. I'll do my best to update our blog tomorrow night, or sometime during the day.
We love you all!!!
Mel
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