We had a great night! No apneas, feeding well, and settling better. However Jake did think he’d be charming and visit with wide eyes for an hour after each feeding through out the night. Why can’t we do that in the day and sleep in the night?
Dr. Aronyk was thrilled with the night, and no changes in Jake’s head size and status means no shunt for now. We will continue to watch for apnea (which he has had two small ones this afternoon) and try to find the reason for it.
Dr. Aronyk was thrilled with the night, and no changes in Jake’s head size and status means no shunt for now. We will continue to watch for apnea (which he has had two small ones this afternoon) and try to find the reason for it.
Another bath today, no more oxygen tubes, IV, or such. He even got to wear clothes for the first time. Please continue to keep the apnea in your prayers. Sometimes even the smartest physicians are unable to give parents reasons for behaviours such as this. I’m terrified that we may not know the reason and I have to go home with him. We might be moved out of ICU tomorrow if the day goes well. Possibly even be discharged by the end of the week, beginning of next if there are no changes.
Amazing. Utterly amazing.
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