Last night was long and stressful. More apnea, Jake was feeding well but hard to settle, seems to be having some gastric reflux. It may be related to the feeding tube. It causes the top of the stomach to stay open, allowing acid to move up. Daddy Kev stayed up after the midnight feed trying to settle baby for a long time. Mom got a few hours of restless sleep.
Jake wouldn’t wake up for his noon feed, actually I tried and tried to get him awake with little to no luck. It was scary because we’d been warned that lethargy is a sign of increased pressure in the brain. The neurosurgeon came a few times and carefully checked him out. The shunt would be an easy fix if the problem was related to the fluid on the brain, but this one decision lasts a lifetime and making it for the wrong reason would be equally bad. The operating room was notified of the pending decision and prepped incase Jake needed it immediately.
Finally at three Jake got restless and ate, and then ate again at 4:30, and then at 7:00. Talk about making up for lost time…
The need for a shunt will be re-assessed first thing in the morning, pending how the night goes, and changes in his “clinical picture.”
Jake wouldn’t wake up for his noon feed, actually I tried and tried to get him awake with little to no luck. It was scary because we’d been warned that lethargy is a sign of increased pressure in the brain. The neurosurgeon came a few times and carefully checked him out. The shunt would be an easy fix if the problem was related to the fluid on the brain, but this one decision lasts a lifetime and making it for the wrong reason would be equally bad. The operating room was notified of the pending decision and prepped incase Jake needed it immediately.
Finally at three Jake got restless and ate, and then ate again at 4:30, and then at 7:00. Talk about making up for lost time…
The need for a shunt will be re-assessed first thing in the morning, pending how the night goes, and changes in his “clinical picture.”
No comments:
Post a Comment